Community and Campus Professionals form a
Rural Health Network to Address Early Childhood
Mental Health Care Issues in Appalachia
     
 

Dr. Montgomery-Reagan, a pediatrician with University Medical Associates and the Ohio University College of Osteopathic Medicine (OUCOM), was concerned about Sarah Anderson1. Sarah had repeated Kindergarten twice and was still experiencing academic and social difficulty in the first grade. Her parents Abby and John were at a loss for what to do. Dr. Montgomery-Reagan referred the Andersons to Sue Meeks, a registered nurse and well child and behavioral health specialist with the Community Health Services program of OUCOM. During Sue’s intake interview with Abby and John, they discussed some of Sarah’s difficulties at school. She was generally inattentive in class, often sat day-dreaming, and had difficulty forming relationships and communicating appropriately with adult figures and peers. As a result, Sarah usually could not complete tasks and was falling increasingly behind developmental standards. As Sue talked with the Andersons, it became increasingly clear that at an early age Sarah had witnessed physical violence and drug abuse. Although Abby and John fought for two years for custodial rights of Sarah, she remained in the care of her biological mother Anne for the first three years of her life. During that time, Anne was physically abused by her then husband in the presence of Sarah. By the time Children’s Services removed Sarah from her mother’s care, she was malnourished, depressed, anxious, and generally unable to bond with other people. Sue stressed to Abby and John, “Witnessing this sort of violence generally has the same sort of impact as abuse itself. It is possible that Sarah is experiencing a form of post-traumatic stress disorder. What is important for you to understand is that Sarah’s responses are quite normal responses to very abnormal and traumatic circumstances.”

With tears in her eyes, Abby lamented, “Sarah doesn’t seem to trust anybody, she thinks everybody lies to her. We know something is very wrong, but we don’t know where to start.” Sue immediately reassured the Andersons, “I don’t blame her. I probably wouldn’t trust others either. But we are here to help Sarah and you get the help your family needs.” As a family navigator, Sue’s job is to be a primary point of contact for the Andersons and ensure that Sarah can access the medical resources she needs. During the intake interview, Sue asked the Andersons’ about Sarah’s basic health and developmental history including speech, language, and hearing abilities, sleeping and eating patterns, toilet training, chronic illnesses, motor coordination, school and social history, and current behaviors.  “I don’t believe that we can just focus on Sarah,” stressed Sue, “we must also address family history and factors that may relate to Sarah’s difficulties.” Sue then explored the medical histories of Sarah’s extended family including traumatic events, mental health diagnoses, physical and sexual violence, alcohol and drug abuse. After identifying the health care providers that previously had worked with Sarah, Sue went to work connecting the Andersons with other health care providers including an early childhood mental health specialist at Tri-County Mental Health Services and a speech, language and hearing specialist at Ohio University. Sue patiently explained why these referrals were important and answered questions about symptoms and medications for conditions like anxiety, post traumatic stress disorder, and attention deficit disorder (ADD). “It is critical for Sarah to have a thorough mental health evaluation because many of the same behaviors are associated with anxiety, ADD, and post traumatic stress disorder. A thorough evaluation will help ensure a correct diagnosis.” Sue also provided the Andersons with information about their legal rights to a multi-factorial evaluation (MFE) of Sarah at school. After signing a release form allowing Sue to share Sarah’s medical history with other providers, John sighed, “For the first time in a long time, we have hope. Thank you.” (Field notes)2


 

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r. Montgomery-Reagan and Sue Meeks, RN,C are members of the board of directors of the Integrating Professionals for Appalachian Children (IPAC). IPAC is a rural health network composed of university, community, and consumer partnerships aimed at strengthening Southeastern Ohio’s health care delivery system to meet the needs of Sarah Anderson and children like her. After the initial referral from Montgomery-Reagan, Meeks developed a comprehensive care plan for Sarah that included her family and the expertise of a pediatrician, early childhood mental health specialist, physical therapist, educators, and a speech, language and hearing specialist. As an IPAC frontline provider, Meeks will continue to serve as the Anderson’s primary point of contact as professionals work interdependently to address the complex challenges facing Sarah.

The federal Health Resources and Services Administration’s Office of Rural Health Policy has awarded a three-year, $540,000 grant to Ohio University to support the IPAC network. IPAC serves children and their families in Athens, Meigs, Hocking and Vinton counties in Ohio. The population of these counties approaches 127,000 people, including 7,021 children between the ages of 0 and 5 (U.S. Census, 2005; http://quickfacts.census.gov/qfd/states).  Like the broader region of Appalachia, these counties are characterized by higher levels of unemployment and poverty and lower levels of education in comparison to national baselines (http://factfinder.census.gov). All four of these counties are federally designated as medically underserved areas. Residents of these counties generally have less access to mental health care due to few material resources, experience geographic isolation from mainstream medical infrastructures, and face uneven distribution of health care providers across rural and urban settings.

Rural health networks like IPAC offer an alternative way to organize mental health care resources for traditionally underserved populations. IPAC includes thirteen community agencies in addition to several Ohio University departments and clinics that provide professional training and services (for a complete list of partners, see http://www.oucom.ohiou.edu/ipac/partners.html). By integrating their clinical expertise and resources, IPAC affiliates offer coordinated and comprehensive services that address early childhood mental health issues and concerns. Over the next three years, IPAC members will develop more fully a family care navigator program including intake mechanisms and protocols, facilitate interdisciplinary mental health assessments and comprehensive care plans for children, develop an infrastructure for scheduling and billing of support providers employed by different agencies, and expand training of childcare and healthcare providers to screen children regularly for social and developmental risk. 

Importantly, IPAC members are integrating mental health care assessments and services into settings where young children already are including primary care offices, preschools, and childcare centers. Sherry Shamblin, P.C.C., an early childhood mental health specialist employed by Tri-County Mental Health and Counseling Services and board member of IPAC, underscored the importance of bringing mental health specialists into environments already inhabited by children, “There are not a lot of people who have expertise in serving young children in any kind of specialized service like mental health, particularly in southeastern Ohio. But by bringing mental health care specialists into childcare centers and having them provide consultation or training to teachers, then you are shoring up services to address mental health concerns and you are developing the capacity of other frontline providers like teachers. The impact is huge compared to just keeping a mental health care provider in a clinic.”  Teachers at the Hocking-Athens-Perry Community Action Head Start Program, one of many programs served by Sherry, couldn’t agree more. Beth Helber, a teacher at the Athens Head Start site, shared, “It is just incredible to have Sherry come in and observe our teaching in the classroom and give us pointers about things we could do when we are talking to the children and ways to manage different things. I just really appreciate her work. I’ve talked with other people in centers in the region and they don’t have access to a mental health specialist and really feel like they need one. So, I feel extremely lucky. This resource is just critical to what we do.”

Teachers at the Athens Head Start provided numerous examples of successful interventions facilitated by Sherry. Consider the following story told by Jennifer Cain, “Recently, we had a little boy who just couldn’t concentrate, and he would fight and kick. He wasn’t even able to really be part of the classroom for very long. And Sherry came in and we did some screening evaluations. We worked with his parents, and talked about different options and finally referred him to a doctor. He is on medication now, and made the transition to kindergarten better than he would of otherwise.” Jody Hart narrated a similar story, “Addison was my shadow for two months, and constantly wanted her mother. She would not leave my side. And through our consultations, we figured out that she was dealing with an anxiety problem. Sherry helped us create a schedule for her that made her feel more comfortable with the routine of the day—we are going to do this first, and this next, and this next, and then it will be time for Mommy to come get you. We did things to reassure her that at the end of the day, she could count on her Mom coming to get her. We also had a picture schedule, so that the little girl could go over and look at pictures of what was going on. She could go to her cubby and see that after snack her mom would come get her. We worked with the mom too to make sure she had transition objects, something of mom’s in her pocket that made her feel more comfortable without her mom there. We had a picture of her mom here in case she just needed to see it. All of this was to help her feel like school was a safe place, because we weren’t sure she felt like that in the beginning.” In reflecting on the coordinated interventions for Addison, Sherry emphasized, “There is comfort in the routines we created. I think it made Addison feel safer in this environment when she knew what was going to happen. And if she had shown up in kindergarten without having had any interventions, she probably would have fallen through the cracks. But she moved on to kindergarten and didn’t have a bit of problems.”

            The diverse partners and initiatives of IPAC are united by their emphasis on early childhood mental health care interventions. Consider Sue Meeks’ testimony, “Whenever we get afraid or threatened or worried, the physical response from early childhood traumas comes right back. So, catching those things early is critically important. Straightening out kids’ responses early will prevent the sort of engrained and automatic responses that become so habitual over the years that it becomes more difficult to break the older they get. It’s no different than other medical fields. If you have cancer and you catch it early, you have a better chance of successful treatment. If you have diabetes, and you have early intervention, you are probably going to have a better outcome. It’s the same with mental health. You lose time if you don’t catch it early. Kids often learn to read or speak at certain times, and once that time is gone, it becomes much harder for it to be that easy for the child again.”  Sherry Shamblin agreed, “If we are able to intervene when kids are young, we are going to be able to prevent more severe problems from developing when the kids are older. We can help provide a more solid foundation that will benefit them for the rest of their lives.”

We live in an age of limits. Scarce resources and services related to early childhood mental health led rural community agencies and university partners in southeastern Ohio to form IPAC. Children and families are already realizing the benefits of this rural health network. The Anderson family is able to access the interprofessional services that Sarah needs. Children and families involved with the Hocking-Athens-Perry Community Action Head Start Program receive on-site mental health care assessment and treatment through coordinated efforts with Tri-County Mental Health and Counseling Services. In reflecting on the benefits of IPAC, Sherry Shamblin stressed, “By forming the network, we have become a more powerful and collective voice that has allowed us to access funding and to integrate services so families can have more streamlined and successful services. What we found prior to IPAC is that people were really in their own silos doing their own thing, and we had families who went here, then went there, then went here, then went there over a period years and still really never knew what was going on with their child. So the network approach has already made a difference.” Sue Meeks credits IPAC’s success in part to the passion and commitment of its affiliated partners, “I think what is special about IPAC is that we all have similar passions. It may not be coming from the same place, and the passion may not be aimed at the same thing, but we’ve been successful because we all care deeply about mental health issues. Every single one of us is passionate about what we do. And you just can’t fail when you have that much passion sitting around one table.” The Ohio Department of Health acknowledged the success of IPAC by awarding the network the annual Distinguished Rural Health Program Award in September of 2007.

  

To learn more about IPAC, please contact Dr. Jane Hamel-Lambert, President of IPAC and a faculty member in the Department of Family Medicine at Ohio University’s College of Osteopathic Medicine (hamel-lj@ohiou.edu), or John Borchard, RN, BSN of the Southern Consortium for Children and chairman of the IPAC Board of Directors (jborchard@scchildren.com).


[1] Pseudonyms are used for patients and family members in an effort to protect their privacy.

[2] These field notes were written by Dr. Lynn Harter based on her observation of the intake interview between the Andersons and Sue Meeks.

     
 
Article written by Dr. Lynn M. Harter, Associate Professor of Communication Studies, Ohio University (harter@ohio.edu). Photographs by Lawrence Hamel-Lambert, M.A., Associate Professor of Visual Communication, Ohio University, Athens, Ohio.
November, 2007
     
   
     
 
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